The Sickle Cell Disease Patients Community of Tanzania is a movement born out of compassion, driven by technology, and rooted in the belief that no patient should face this journey alone.
To empower every person living with sickle cell disease in Tanzania through accessible technology, a compassionate community, and a bridge to quality healthcare — so that no warrior faces their journey alone.
A Tanzania where every sickle cell warrior lives fully informed, supported by community, and connected to the care they deserve — where the disease no longer defines their limits.
Sickle cell disease (SCD) is one of the most common genetic blood disorders in the world — and Tanzania carries one of the highest burdens in Sub-Saharan Africa. It is estimated that 1 in 4 Tanzanians carries the sickle cell trait (AS genotype).
The disease causes red blood cells to become rigid and sickle-shaped, blocking blood flow and causing painful crises, organ damage, fatigue, and a significantly reduced quality of life. Children born with the SS genotype face the most severe challenges.
Despite its prevalence, SCD remains significantly under-resourced. Patients often struggle to access specialist doctors, consistent medication supplies, and reliable health information — challenges our app is designed to directly address.
SS (severe), SC, and S/β-thalassemia are the most common forms of sickle cell disease affecting Tanzanian patients.
Without early intervention, up to 50–90% of SCD children in Sub-Saharan Africa die before age 5. Early diagnosis and care are life-saving.
Hydroxyurea — the most effective SCD medication — remains difficult to access consistently for many Tanzanian patients outside major cities.
Mobile penetration in Tanzania exceeds 80%. The SCDPCT App leverages this to bring healthcare resources directly to patients wherever they are.
SCDPCT began as a grassroots patient support group in Dar es Salaam — a gathering of patients, parents, and caregivers who wanted nothing more than to share experiences and find answers together.
Over the years, as our community grew across all 26 regions of Tanzania, it became clear that a digital platform was needed — one that could bring the same warmth and support of those early meetings to every sickle cell warrior in the country, regardless of location.
The SCDPCT App is the result of that vision: a labour of love crafted by those who live with SCD every day, guided by medical professionals who deeply understand its challenges.
SCDPCT was established as a patient support community in Dar es Salaam, bringing together patients and families for the first time under one roof.
Launched campaigns across schools and hospitals to raise awareness about SCD traits, early testing, and the importance of genetic counselling before marriage.
Recognised the gap between patients and healthcare resources. The vision for a dedicated mobile app was born — driven by community need and medical expertise.
Today, we are building and refining the app with direct input from patients, caretakers, doctors, and pharmacists across Tanzania. The community shapes every feature.
The SCDPCT App officially launched during World Sickle Cell Awareness Week, June 2026 — a milestone moment for every warrior in our community. Available free on Android. iOS coming soon.
Download on Google PlayEvery feature, every interaction, and every decision is made with the patient's dignity and wellbeing at the centre.
We believe healing happens together. Our platform is built to connect, not isolate — because shared strength is stronger strength.
All health content and features are validated with medical professionals. We never compromise on accuracy or safety.
Patient data is sacred. We use encryption, strict access controls, and transparent policies to protect every user's information.
Born in Tanzania, built to scale. Our app speaks Swahili, understands local healthcare realities, and is expanding to serve sickle cell communities worldwide.
We are always evolving — listening to our community and working with developers and doctors to build better tools every day.
The SCDPCT mission is expanding beyond Tanzania. We are building a global network of passionate advocates who will champion sickle cell awareness, support, and technology access in their home countries.
Our pilot programme launched in Tanzania, and we are now inviting dedicated individuals across Africa and beyond to join as Country Ambassadors — helping every sickle cell warrior, wherever they live, access the tools and community they deserve.
Lead local campaigns about sickle cell disease, carrier testing, and genetic counselling in your country — making invisible suffering visible.
Help patients and families in your region discover and use the SCDPCT app to manage their health journey and connect with their community.
Connect with hospitals, clinics, NGOs, and community organisations to grow the SCDPCT presence and create lasting support networks.
Provide localised feedback on features, language needs, and healthcare challenges unique to your country — you help us build what your community truly needs.
Download the SCDPCT App free on Android and join thousands of warriors, caregivers, and medical professionals working together to change lives — starting in Tanzania, growing across the world.